Unlocked: An Oral History of Haden’s Syndrome (2014)

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Between that first appearance and today, our nation and the world has experienced the tragedy of the onset of the disease, the triumph of the technological and social response to its challenges, and the aftermath of both—positive and negative—on our culture and the world we live in.
This document is the result of interviews with many of the doctors, scientists, politicians, and ordinary people who were instrumental in both our understanding of Haden’s syndrome and our national and global respons
...e to it. While no single document can comprehensively chronicle the effects and changes to our world that Haden’s syndrome created, the goal with this document is to give those who were born after its onset—some of them now fully adults—a screenshot of how the generation before them responded to what is now considered the single greatest public health challenge the planet has experienced.
It’s also to remind them that while Haden’s syndrome is no longer transmitting in such vast numbers, it is still one of the planet’s major ongoing health issues, with tens of thousands of new cases annually in the United States alone.


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